People with motor neurone disease (MND) require more support to ensure they are able to adapt their homes to help them manage their condition.
The BBC recently reported on calls from the Motor Neurone Disease Association for greater funding to support those with MND, as well as an overhaul of the system to ensure people receive support quickly.
Without making it quicker for those with MND to access financial and other support to adapt their properties, many risk being trapped in inaccessible homes, the charity warned
Sian Guest, policy and public affairs manager at MND Association, explained why it’s so important for those with MND to receive support quickly.
“MND develops very quickly and once people have been assessed it takes too long for those home adaptations to happen,” she explained.
This results in those with MND becoming stuck in their homes, with some not even receiving the support they require before they die.
According to research conducted by the MND Association, aside from the time it is taking for home adaptations to be made, one of the biggest challenges for those with the condition is the up-front cost of making such alterations to a property, or being forced to move home to one that is better able to meet their needs.
Other challenges identified by the survey include the emotional burden of adapting a home or moving, as well as a lack of availability of accessible homes.
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12 March,2021
